Tag Archives: 2018

Politics: if you don’t care now, when will you?

The more I watch the news or see people talking about politics on Twitter the more frustrated I feel. That’s not just a reaction to Brexit, Trump etc., it’s down to the reporting, or the tone of the conversation itself. I am sure if you are from the UK you are more than aware of the actions of our government over the past eight years: austerity, cuts, changes to the benefits system, sanctions for the sick and disabled and cuts to social care. There have been studies done linking the government’s actions to tens of thousands more deaths than would be expected over any other eight year period.

https://fullfact.org/health/austerity-120000-unnecessary-deaths/?gclid=EAIaIQobChMIq72awYrg3gIVGYbVCh05WgumEAAYASAAEgJHifD_BwE

And you don’t have to look far online to find stories talking about the rise in crime, and the cuts in police funding, the changes to benefits that lead to disabled people not being able to leave their homes or afford food, the rise in food banks, and the fact that more working people are having to use food banks due to delays in getting their benefits of up to 12 weeks after being put on universal credit.

https://www.independent.co.uk/news/uk/home-news/food-bank-uk-benefits-trussell-trust-cost-of-living-highest-rate-a8317001.html

https://www.theguardian.com/society/2018/nov/06/universal-credit-surge-in-food-bank-use-trussell-trust

Over the past two years we have seen the UN issue a report that strongly condemns the UK governments treatment of disabled people this has lead to people saying the UK is going backwards in its treatment of disabled people.

https://www.independent.co.uk/news/uk/home-news/un-disabled-rights-uk-government-denounced-criticised-united-nations-austerity-policies-a7923006.html

There have also been reports of a humanitarian crisis in the NHS with patients being left for hours, and sometimes days on corridors without treatment.

https://www.theguardian.com/society/2017/jan/06/nhs-faces-humanitarian-crisis-rising-demand-british-red-cross

Just last week UN Special Rapporteur Philip Alston reported on the scale of poverty in the UK, being very clear a large part of the poverty he was seeing is a result of the governments cruel and unnecessary policies, and that if they wished to they could end those policies overnight, and improve the lives of millions.

https://www.bbc.co.uk/news/uk-46236642

In short it’s pretty clear to anyone looking in from the outside, or anyone living here who wants to see it, that in the past eight years the Tories have brought in a raft of totally unnecessary polices and cuts that have brought misery, and in some cases even death, to the sick, the elderly, the disabled and the poor. We have seen the impact of cuts across the country: domestic abuse centres have closed down leaving abused women and their children with nowhere to go, the sharp rise in food banks and the use of those food banks by people in work, cuts in mental health care that leave those in need with little or no help, cuts to benefits that leave disabled people unable to leave their homes or afford the help that they need to live a decent and dignified life.

https://www.theguardian.com/commentisfree/2017/may/30/disabled-readers-austerity-disability-cuts

There are benefit cuts linked to suicides, and a rise in mental health issues among claimants.

https://www.theguardian.com/society/2018/nov/15/exclusive-new-study-links-universal-credit-to-increased-suicide-risk

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/universal-credit-benefit-mum-suicide-14544736 )

Cuts to the NHS, increasing privatisation, a hostile environment for disabled people and immigrants, the Windrush scandal, the list goes on and on.

https://www.bbc.co.uk/news/uk-politics-43726976

And the steep increase in homelessness since 2010.

https://www.theguardian.com/society/2018/oct/27/universal-credit-fuels-homeless-crisis )

Every day you can see the misery this government is inflicting on its people, and you can see the lack of care, and the targeting of the most vulnerable. People who lived through the Thatcher years of the 1980s say that this is worse, and that it’s getting worse year on year. And yet even though you can see this with your own eyes it’s not always the sense you get when seeing people talk online, or watching the news. It’s not that they never speak about these things on the BBC, but there is no thread. There might be a piece one week that runs for a day about the increase in homelessness, where they will let experts say that government cuts and changes to benefits are driving the numbers up, and the next week there might be an segment on care homes that are having to close down due to lack of funding, but these things hardly ever run for more than a day, and never feel like a part of the same story. There is always someone from the government there to brush them off, and they are never linked. But in fact they are clearly part of the same story; if you are talking about cuts to policing then how can you not also link that to a story about cuts to mental health services by the same government? They clearly connect and are part of a bigger, overall story. Yet every crisis is reported on its own, as if they are all unconnected and just happen to be going on at the same time. The government is never challenged on them all at once, instead they are asked about each one on its own. The debate is broken up in to multiple debates, so the question will be asked “Can we really blame the government for X? or Y? or Z?” And not “Why has X,Y,Z and a dozen other things happened under the same government, at the same time?” This takes away from the real issue – the fact that this government has systematically made the lives of the sick, the poor, and the disabled worse with every new policy.

There is also the fact that whenever you see, or read a report on one of the issues mentioned above the government is given a chance to reply within the story. Now that’s not what I take issue with – my issue is the fact that the reply is always tacked on to the end of the story. Instead it should be looked at, checked against the facts, and talked about within the story. Let’s think about something else for a moment, say the anti-vax movement. We all know vaccines don’t cause autism, that’s just a fact. So if you run a story about that you don’t need to go and find someone who rants on Facebook about vaccines leading to autism, and give them a platform. You can find what they say and break down why it’s wrong, but you don’t need to make them sound legitimate. But if a story runs about how universal credit can lead to people having to use food banks, and you talk to people who say “I am using a food bank due to being put on universal credit.” and you talk to people who run food banks who show you the logs they have of all the people who have come to them after being put on universal credit, then just having someone from the government comment something along the lines of “That’s not true in fact we help….” is not very useful. It makes it look as if just saying “Nope” in the face of facts is a legitimate way of arguing a point. The government can say no if they want, but the point should be made that the facts are there, and they are just acting as if they are not instead of addressing the issue. Facts have to mean something. It’s fine to get the governments response to stories, but if they flat-out lie, try and tell you facts are not facts, or twist things up in a way that can be shown and proved, then it’s your duty as a journalist to show that, not just print what they say and leave it up to the public.

But talking of the public they also have a roll to play in this. Often I hear people saying things like “Things are bad, but you cant blame the government.” or “All politicians are the same.” To say things like this is both to turn your back on facts, and to absolve yourself of any responsibility. If it’s not the governments fault, and if every party is the same why do you need to vote? Why do you need to keep up to date with what’s going on? Why do you need to care if you can have no impact? Being cynical is an easy way out. To care is hard, to want to change things is hard, and to put your trust in a political party is hard. But here’s the thing, not all parties and all politicians are the same – if you ever hear anyone say that you know for a fact they don’t have a clue what they are talking about.

But even those who do have some understanding of politics and do care can frustrate me. The bottom line here is that the government we have is genuinely awful, the country is suffering, you can see the spread of misery and poverty. When I see people on Twitter saying things like “I hate the Conservatives, but I don’t think I can vote for Labour if they do/don’t do…” I just don’t know what to say. I am not someone who thinks the Labour party in any form is perfect. I can recall how angry I was over the Iraq war as a child, and there have been plenty of times I have disliked something Jeremy Corbyn has done, but at no point have I felt Labour under Corbyn would be anything you could even compare to the Tory government.

In politics in the UK you realistically get two options, then unless something dramatic happens you have to wait fives years to be given a chance to change the government you end up with. You don’t get the time to wait for the perfect party, the party that ticks all your boxes and leaves you with zero worries. No one ever gets that, you are not special so you don’t get it either.

If you can see the government we have now, see what the options are and say “Well yes this government is doing all that awful stuff, and a Labour government would not be anywhere near as bad but still….” then I think you have to take a good look at yourself. Voting is not about making yourself feel good, it’s about doing something for the good of the country as a whole. You might not love who you are voting for, but if you know they will do less harm to people than the party in power right now that’s all that should count. Right now the main focus has to be on getting the Conservatives out of power, and Labour is our best option for that. I like Corbyn, but while you might not you still have to admit that he would not proactively target the weakest and most vulnerable in society like the Tories have been doing. I have no problem with people taking issue with things Corbyn and Labour do, now or if they ever get in to power, as I say I do this myself. But what I do have an issue with is people acting as if they can in anyway be compared to the brutal, and targeted cruelty of a Tory government. Politics is not about perfection, it’s about doing the best you can for those who need it the most. This goes for politicians, but also the public; think about all the pain that comes with a Tory government, and then think about if your issue with Labour is really that big.

Over all what I am trying to say is that we need to be honest with ourselves about how things are. When you see things on the news or read about them on Twitter try and think, why are they happening? Who has the power to stop them? And what’s the common thread? The rise in food banks, homelessness, child poverty, cuts to the NHS, a crisis in mental health and social care services, cuts to the policing budget, benefit cuts resulting in suicides, ill health and homelessness, the demonization of the disabled and immigrants, schools unable to afford basic equipment, cuts to SEND services and a myriad of other cruel policies. These things might be reported out of context, as if one day they just happened and no one can tell why, but that’s not true. The truth is that they are all results of deliberate acts by the Conservative party. We live in an age that will be looked back on with sadness, and incomprehension by those lucky enough to have been born too late to live through it, in years to come. They will feel anger and sadness looking back the same way people my age look back on the Thatcher years. The truth is if you’re not angry now, if you’re not passionate now, then you never will be. If now is not the time you stand up, look at what is happening and say No, say I am better than this, I am more humane than this, then you will never do so. What is happening now is not accidental, it’s not unavoidable, and it’s not right. If you do not speak up, and speak out now then when will you?

You can find my new book here: http://www.jkp.com/uk/communicating-better-with-people-on-the-autism-spectrum-34251.html

If you need any help or advice abut Asperger`s/Autism or simply want to talk about it check out our free help and advice service ASK-PERGERS?

Twitter https://twitter.com/ASKPERGERS

Facebook https://www.facebook.com/ASKPERGERS?ref=hl

And have a look at our books (at the time published under pseudonyms, but we did write them trust us on that!)  http://www.jkp.com/catalogue/author/1762

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Writing aims for 2018.

Last year was a bad year for me writing-wise. I put up at least two blogs where I talked about what a strange year it was, and how little I had got done so I wont go over that too much here. I just want to write a bit about what my aims for 2018 are, and why it matters for me to get back in to my writing.

First of all blog-wise I want to put out at least one blog per week. I am already on track with that with this blog, and the one I have already posted this year. Of course keeping that up for a full year is a bigger task, but that’s why I want to write blogs in advance, and plan out when I am going to be putting them up instead of just writing them when ideas come in to my mind. It’s also why I am open to ideas relating to what you might want to see me write about on here this year. If you have any ideas feel free to comment below, or get in touch via Facebook or Twitter. Last year I did write a bit on why blogging was important to me, how it helps me get my ideas out there without having to worry about them meeting somebody else’s standards. And I do feel that is one of the great things about blogs; autistic people can put our ideas and advice out there for each other (and non- autistic people wishing to learn more) to read and learn from. Sometimes if I am having a hard day just coming a across a blog that puts in to words something I have been dealing with can be a huge help, and I know from comments left on my blogs that my writing can also have that effect. I enjoy putting up blogs, and I also like the fact that at times what I write can help other people.

When it comes to books that’s a bit more open. I know I would like to write at least one book relating to autism in some way in 2018, but I am not quite sure what that will be. There is a lot around that subject that interests me so it’s a case of working out what I feel able to talk about and what I want to talk about first, and getting something together. That being said I would also like to do more work on my non-autism related books this year – as some of you know I do write horror/crime books, and I would like to make sure I put the time in to edit the draft of the work I have already done, and write the first draft for another book.

That’s really it when it comes to writing goals for the year, but the main point underlying it all is I want to get back to enjoying writing, and thinking of myself as a writer. Being a writer should be the easiest thing in the world – all you have to do after all is sit down and type. I am not talking about getting to the stage of being a published author or even being a good writer to the point where other would enjoy your work, I am just talking about being a writer. If you write regularly and finish your projects (it does not count if you leave everything half way through!) then you’re a writer. Odd then that there are such a lot of people out there saying they wish they could be writers. Perhaps what they mean is they wish they could be published because as I say to be a writer all you have to do is decide to write, and get on with it. Sometimes it is easy to lose sight of that though, easy to drift off and leave weeks between spells of writing, to fall in to that trap of waiting for the right moment to write, and that’s when you stop thinking of yourself as a writer and start thinking of yourself as someone who would love to be able to write. I feel like 2017 was like that for me; I did not write anywhere near enough to call myself a writer last year, and I want 2018 to be different.

I do not normally care much for New Year’s resolutions, but there is something to be said for looking back on the past year and seeing if it was well spent. If not then when you turn to look at the next twelve months stretching ahead you have to think to yourself “How can I make sure when I am looking back on 2018 I am going to feel it was worth while?”

For me a year full of writing would be a huge step in the right direction in terms of what I want to go on to achieve in my life, and as I say when you bring it down to its most simple form nothing should be more easy to stick to than doing more writing.

You can find my new book here: http://www.jkp.com/uk/communicating-better-with-people-on-the-autism-spectrum-34251.html

If you need any help or advice abut Asperger`s/Autism or simply want to talk about it check out our free help and advice service ASK-PERGERS?

Twitter https://twitter.com/ASKPERGERS

Facebook https://www.facebook.com/ASKPERGERS?ref=hl

And have a look at our books (at the time published under pseudonyms, but we did write them trust us on that!)  http://www.jkp.com/catalogue/author/1762

The transition in to January: Why it can be so hard and what can help with it.

I have written quite a bit about how hard Christmas and New Year can be for autistic people, but it’s also worth saying how hard January can be. December is full of change and we all know how hard that can be, but by the time you have started to get used to it, it all changes back again. What you eat, what time you go to bed, your routine, the decorations everything goes back to normal pretty quickly. Because it’s going back to normal it might not seem like as big a change, but it is, and it can in fact be even worse. At least with Christmas you get time off or nice food – the change might be hard, but for a lot of people it at least comes with positives. But January is an almost universally hated month to begin with; nothing much happens in it for most people, the fun of the holidays is over, and everything changes back to normal within a day or two.

For autistic people there is also the fact that January can be spent dealing with the build-up of sensory overload that can come with Christmas. It’s not uncommon for a meltdown to occur days, or even weeks after the event that trigged it. There have been times where I have become overloaded due to going out, but have seemed to be doing quite well for three or four days after only to have a meltdown the next week. In December you have a month full of change and things that can lead to a build-up of overload, and the knock-on effect of that can be felt well in to January.

So when you put those things together you have a month that can be pretty dull and grim anyway, starts with a big change all of its own, and is more than likely still being impacted by the events of December.

What can you do about this?

The first and most important thing is just to be aware of it. That might sound strange or not specific enough, but it is extremely easy to forget all about how hard January can be. December is over and that is the month that draws attention to itself; the changes are very clear, and it’s easy to see what impact they might have. But everything changes back so fast it’s easy to forget how long that impact can last, and also to forget that the change back to normal life is a huge change all on its own. Add that to the fact that the year is literally changing, and you can see why you should be aware of how hard January can be, but also why it often gets forgotten about. Just being aware of the issues that might arise will help. If you’re feeling overloaded or stressed-out remember why that might be, and perhaps be on the look-out for signs of a meltdown, or just keep in mind that just because the year changes the build-up of overload will not go away.

Another idea might be writing down how things will change, and if these changes will be good or bad. This is something worth doing at the start of December too, and it might be that you do it all in one go – talking about how things will change for Christmas and New Year, and how they will change back. Or you might do another chart for January talking about how things will change back, how this makes you feel and what the impact will be, for example less time around the house, different food, and the fact that that might make you feel more stressed or overloaded. (If you want to find out more about our strategies for dealing with transition check out our book on the topic https://www.jkp.com/uk/helping-children-with-autism-spectrum-conditions-through-everyday-transitions.html )

If you can you might also ease yourself back in to things slowly. So plan things out: What day are you taking your decorations down? When are you going to change your diet? Perhaps don’t plan one day to switch everything back, spread it out over the first week or so of the year so that it is not so overwhelming. If you have work or school then you will have a set day you need to be back at that, but perhaps don’t change everything on that date. So you could take you decorations down the day before or the day after so that the change does not happen all at once.

It might also be worth planning a few nice things to do in January. It’s a month most people dislike and it can be made better by having something positive in it. This will not work for everyone as making plans to do things outside the norm can sometimes just create more stress and change. For me a positive plan might be to try and get out for a few walks in the park. So nothing with any real social interaction or travelling, just something to help ease the tension in a house containing two overloaded, autistic people!

It might be that your plans are small and specific like mine, or it might be than having a few bigger plans works for you. Nothing will work for everyone, and everyone is different so just find what works for you and stick with it.

December and January can be hard months – fun at times, but also hard – and one key thing that you have to bear in mind is some, not all but some, of the change you can opt out of. You don’t have any control over school, college being closed, but perhaps if there are shifts on at work you could take them. You can’t stop everyone else putting up Christmas decorations, going out or having a party for New Years, but you don’t have to make a fuss about any of it. You don’t have to change what you eat, what time you go to bed, you don’t have to stay up till midnight, and if you work from home you don’t have to stop working or change your routine over the holidays. I am not suggesting that you don’t get in to the holiday spirit as lots of autistic people (like myself) love doing so even if it comes with some challenges. But what I am saying is that for some people not making those changes, and therefore having less to change back in January, might make this time of year a bit easier. And if that’s the case then my point is that you should do what works best for you regardless of any pressure from family, or society as a whole. That might be more of a tip for the coming December, but I just thought it was worth putting in.

With all that being said I don’t want to sound like I am being wholly negative about this time of year. It can be nice to start a new year and look forward to the year ahead. It’s just that I know from my own experience that it can also be a hard time of year. Hopefully you all had a good Christmas and New Year, and January is not proving to be too difficult for you.

You can find my new book here: http://www.jkp.com/uk/communicating-better-with-people-on-the-autism-spectrum-34251.html

If you need any help or advice abut Asperger`s/Autism or simply want to talk about it check out our free help and advice service ASK-PERGERS?

Twitter https://twitter.com/ASKPERGERS

Facebook https://www.facebook.com/ASKPERGERS?ref=hl

And have a look at our books (at the time published under pseudonyms, but we did write them trust us on that!)  http://www.jkp.com/catalogue/author/1762