I have a new book coming out on the twenty first of this month. It is called Communicating better with People on the Autism Spectrum – 35 things you need to know. This is a pretty self-explanatory title. In the book I list 35 things that I think it is essential for autism professionals to know when they are communicating with autistic people. I wanted to talk a little bit in this blog about where the idea came from, and why I thought it was important to write.
Throughout my life I have had quite a few dealings with professionals. Some of these have been great. They have been essential even to helping me overcome problems, and get the best out of my autism. But increasingly, as I have grown older, I have become more and more frustrated when meeting with so- called autism professionals. I have been faced with a baffling lack of knowledge, concerning even the most basic aspects of autism. I have been in meetings that have run for almost three hours, and over-all been left with a feeling of frustration, disappointment and confusion at the conclusion of these meetings. As I could feel myself getting increasingly angry about these issues I decided to write something to channel that anger and frustration in a way that might be constructive, so I wrote an article for the Guardian to put out in a health and social care blog. The idea being that professionals would read this article and realise some of the things that they could do, or could avoid doing, in order to make life better for people with autism. I wrote two related articles which did well, and received several thousand shares. It also led to me being contacted by my publisher via twitter with a request to write a book that would be an expansion of the article. I was more than happy to do so because to tell the truth I had a lot more that I felt I needed to say on the subject.
When I sat down to write the book I didn’t want to write something that was merely going to criticise professionals, and tell them how bad they are at their jobs. I wanted to write something that could be read by people who are good at what they do, but who understand that as people they may not think of everything, and there is always something to learn; professionals with enough experience to know that they can’t look at things with an autistic mind, and that it is OK to take advice from someone who can. But more than this I wanted to write something that if it got in to the right hands would mean that less autistic people would be left with those feelings of anger,confusion and frustration that I experienced after some of my more unsuccessful meetings with professionals. Because that is the thing, the professional who presided over the three hour meeting for example, was not a bad person. They were newly qualified and probably didn’t understand that I had refused a break an hour in as I assumed it would be a ninety minute meeting as originally planned. Unfortunately the meeting ran over by a significant amount of time. I wasn’t offered another break and there was an incredibly noisy event going on just outside the office in which my meeting was taking place. It was one of the hottest days of the year and I wasn’t offered a drink as the meeting progressed. What makes this even worse is that my Mum had contacted them before we went and requested that I be seen by someone with a good understanding of autism. The meeting itself was shambolic. But my point is that this wasn’t due to the professional themself being vindictive or nasty, it was due to them not understanding. They made mistakes the same as any newly qualified professional would do. It is just that in this kind of job when you make a mistake it is the autistic person who ends up suffering.
So in short, I decided to write this book to help professionals and autistic people. I would like to think that even the best professional can get something from the book, and this might in some way help other autistic people in the future.
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And have a look at our books (at the time published under pseudonyms, but we did write them trust us on that!) http://www.jkp.com/catalogue/author/1762
And here`s the link to our new E Book Autism & Animals – the benefits of animals for autistic people https://www.amazon.co.uk/dp/B01GO1N1X6